Seth Wohlberg
The RE Children's Project was founded in 2010 to increase awareness regarding Rasmussen's Encephalitis (RE) for the primary purpose of supporting scientific research directed towards a cure.  RE is a rare neurological disease that causes incurable epileptic seizures, cognitive deficits and paralysis of 1/2 of the body. RE typically affects previously normal children aged between two and ten years and typically runs its course over a 1 to 2 year period.
RE is resistant to standard anti-seizure medicines and the only effective “treatment” is a radical brain surgery in which ½ of the brain is removed or disconnected. Recent progress in understanding of the disease, and the emergence of therapies that slow disease progression and help control symptoms, has led some researchers to believe that more targeted and effective medical treatments are potentially within reach.  Since our founding we have sponsored cross-disciplinary research conferences and funded leading edge research around the globe focused on increasing our understanding of RE. Seth Wohlberg Seth has lived in Darien CT with his wife, Debra for 20 years.  He has a daughter Grace, 14, and a son, Michael that attends the University of Amherst at Amherst.  Seth is a partner at the Far Hills Group LLC, located in New York City and has spent his entire career in the investment and hedge fund businesses.  He joined Far Hills in 2001 and his previous employers have included ING Group, CDC Investments, and Bear Stearns.  Seth founded the RE Children’s Project in 2010 after his daughter was impacted by RE thus changing their lives forever. Today he is active advocate on behalf of RE, epilepsy, and rare disease.  He attended SUNY at Albany and earned an MBA degree at Emory University.  Seth is also a Chartered Financial Analyst (CFA) as well as Chartered Alternative Investment Analyst (CAIA).    
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